A report on our July 11, 2014 event hosted by Arogya World to present preliminary findings of our global survey of 10,000 women
Meet Amelia. She lives in Chuburna, Mexico, and suffers from both hypertension and diabetes. Complicating this struggle is the fact that she is the caretaker of her aging parents—a mother who is bedridden from stroke and a father who is blind. Furthermore, she and her family cannot afford to pay for the care and support they all desperately need.
Amelia’s story gives voice to how millions of women around the world —often in more ways that one—cope everyday with non-communicable diseases (NCDs) such as diabetes, heart disease, cancer and chronic lung diseases.
On July 11, Arogya World held a roundtable discussion at the United Nations to present and discuss the preliminary findings of our global survey of 10,000 women on the impact of NCDs. More than 60 people attended the event, which was co-sponsored by the governments of United States and Mexico and implemented in collaboration with several like-minded organizations. It was a true multi-stakeholder discussion, with about a dozen Member State representatives, four UN agencies, several public health thought-leaders, and non-profits from women’s health and NCD organizations, weighing in on what the survey means for the future of our world.
We opened the session with the video of Amelia, which was produced in collaboration with the Partnership to Fight Chronic Disease. Our survey and the video telling stories like Amelia’s allow us to honor women’s struggles, put a human face on NCDs, and inspire us to continue our mission of changing the course of chronic disease.
Dr. Nalini Saligram, Founder and CEO of Arogya World, welcomed the group and provided an overview of the survey’s findings:
- NCDs affect most families. Two out of three women said they or someone in their household had an NCD.
- Half of the women in our survey were caregivers and two in 10 women said caregiving limits their ability to work.
- Women lag in NCD testing.
- The pain (especially financial) of NCDs is felt most in less developed countries.
Several prominent guests then provided comments on the survey, and its implications for women and NCDs:
- Sally Cowal, who runs global health at the American Cancer Society, and represented the Task Force on NCDs and Women’s Health, pointed out, “This survey gives a voice to the millions of women who have died from these diseases…we need to empower women and we need to keep them alive.” She also said that global health is local health.
- Jonathan Klein, Associate Executive Director at the American Academy of Pediatrics and representing NCD Child, pointed out that parents often do more for their children than they will do for themselves, such as creating a smoke-free environment. He pointed to the caretaker role highlighted in the survey, and said that we have an opportunity to call attention to the links between maternal and child survival and the NCD movement.
- Daniel Seymour, Deputy Director at UN Women, commenting further on the caregiving role of women, highlighted the role that men could play in easing the burden that NCDs put on women.
- Susana Fried, Senior Advisor at the United Nations Development Programme, said we should look to the AIDS/HIV movement for lessons on how to fight NCDs.
- Kerida McDonald, Senior Advisor at UNICEF, said the NCD movement is gathering attention and spurring collaboration at the UN; it’s something Member States can rally around. She also said we need to involve youth in the movement.
- Echoing this thought, Ariel Pablos-Mendez of USAID, who spoke on behalf of the US Government, said engaging the younger generation is a priority for USAID. They are working on fighting tobacco use and obesity worldwide. He suggested the group work to get NCDs on the agenda for the upcoming summits convened by USAID that focus on measurement in global health.
- We also heard from Dr. Eduardo Jaramillo, General Director at the Ministry of Health in Mexico, who said it’s important to have information—evidence of problems and the extent of them—in order to create effective policy. He said Mexico is working on various issues, such as fighting obesity and expanding the availability of breast cancer screening.
We closed with a powerful video message prepared especially for Arogya World from HRH Princess Dina Mired of Jordan, who said: “The [Arogya World] survey then takes the analysis deeper and sheds light on the extra burden on women for being, simply, women—who are the caretakers of their families and how their lives are made so much harder and even impossible as they face NCDs.”
We are grateful to Jeff Sturchio, the President and CEO of Rabin Martin, for expertly moderating our event, making sense of the many different perspectives, and for keeping the audience engaged throughout. We also thank him for his wonderful piece in the Huffington Post on women and NCDs. Many thanks also to Ken Gaalswyk from Abt SRBI, for the analysis of the results from our survey.
Next steps include finalization of the survey report, and proper launch in September. Stay tuned for more information and more videos in the coming months.
More photos of the event can be viewed on our Facebook page.